Category: Project

Voices of Empowerment

1. So Much More Than Just a Test

2. The Subtleties and Nuances

3. Walking in Someone Else's Shoes

4. An Important Part of Multidisciplinary Teams

5. "Ripple in a Pond" Effect

6. Fostering Resilience

7. Helping Patients Cope with Bad Results

Working Through Pros and Cons of Difficult Decisions

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

Empowering people to make decisions that feel right for them

The ‘Voices of Genetic Counsellors’ film series was developed to explore and convey the work of Genetic Counsellors, highlighting the skills necessary to empower people to make decisions about genetic information that are right for them. The films themselves are a powerful tool for the healthcare profession to draw knowledge about the role and impact of genetic counselling, and the value of research in order to evolve practice.

Behind the Scenes: ‘Voices of Empowerment’

Bringing Stories to Life

Part 1: Health & Connection to Genetics

Part 2: Fairness and Justice

Part 3: Search for Sorry

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

Brenda – a documentary in 3 colourful parts

Only Human has worked in collaboration with the world-renowned Ridley Scott Creative studio to illuminate the story of Brenda Agyeiwaa Poku. Intimately captured by feted young director Yasmin Godo, and turned into three short, animated films using the distinctive emerging art of Nathan Addai, Toby Cato, and Alex Zepherin – the films highlight Brenda’s colourful journey to now, the promise of genetics to help people – like her – with Sickle Cell disease, and the ever-present spectre of marginalisation and disadvantage in the NHS.

Behind the Scenes: Bringing Stories to Life

In our Lifetime

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

‘In our Lifetime: The UK Citizens Jury on Human Embryo Editing’

Only Human principal Professor Anna Middleton and her team at Wellcome Connecting Science worked in collaboration with film director Mark Downes to capture a remarkable UK event – a Citizens Jury where ordinary people with lived experience of inherited disease had their say on the moral and ethical dilemmas surrounding ’embryo editing’, i.e. the ability to change the DNA of human embryos to cure inherited disease.

Behind the Scenes: Awards for ‘In our lifetime’

Liming with Gran

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

Breaking Taboos with
a Game of Dominoes

This film was made in collaboration with creative agency Ketchum.
The film inspires cross generational conversation amongst first and second generation Caribbean families, stirred up by a fierce game of dominoes. 

The campaign didn’t just stop at a film, there was a targeted outdoor advertising campaign in targeted parts of the UK, bespoke domino sets homed in colleges, barber shops, community centres and even a set flown to Jamaica,
and a premier of the film at the Genesis cinema in London.

Watch Behind the Scenes of Liming with Gran

Download Film

Socialising the Genome

#mygnome

#DNAZING

#genedeckshuffle

#glitch

#reasonstobecheerful

#searchme

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

AKA The Only Human Origin Story

Back in 2013, Only Human’s three principals agreed that there was something fundamentally anti-social about how medical science ‘spoke’ to the ordinary people especially around the subject of genomics. The language used sometimes upset, confused or disenfranchised people instead of informing and empowering them. 

So the three (Middleton, Parry and Borra) collaborated on a project to research whether a more insightful and emotionally driven type of creative story telling might provide better ways to start a conversation.

Building on insights from focus groups with everyday people from a housing association in London, a parents group, a men’s curry club, a choir and a women’s institute, new creative ideas were born on how to explain genetics to people who know nothing about it. And so Gnomes, Glitches, new sexual euphemisms, and the odd conspiracy theory entered the genomics conversation.

From all of this, Only Human was born. 

Behind the Scenes: ‘Socialising the Genome’

The Music of Life

What is a gene?

X-Inheritance

Recessive Inheritance

Dominant Inheritance

De Novo

3 Outcomes from a Test

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

Can a metaphor for genomics be music to the ears for patients?

Only Human worked with the godfather of music video and film maker Tim Pope to bring the complexities of genomics to life with a simple musical metaphor.


The series of 6 films were conceived and scripted using insights and observations from Genetic Counsellors at Addenbrooke’s Hospital. They have been trialled by genetic counsellors at Guy’s and St Thomas’ Hospital in London, directly with patients attending the Genomic Medicine Service. They cover topics that are routinely covered in clinical conversations, including: What is a gene? – X-Inheritance – Recessive Inheritance – Dominant Inheritance – The meaning of De Novo Variants– Outcomes from a Genetic Test.

Behind the Scenes: The Music of Life

It’s only human…

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

Fear, distrust, and the hope for the better

Only Human has collaborated with Jonathan Barnbrook, the celebrated award-winning film-maker and graphic artist, to turn one of our research focus groups into an animation. He explored how a creative wrapper could provide additional agency to seldom-heard voices, using imagery to highlight some instinctive reactions to the word ‘genetics’.

Jonathan’s film uses feelings and emotions as a hook to summarise what the Only Human project is about.

It also shows us that public audiences are asking doctors and scientists to think carefully about how they deliver (and communicate) science that is transforming medicine.

Behind the Scenes: Jonathan Barnbrook’s Film

The Legacy of Language

Does this make you feel anything ?

X

liked it


not at all very

indifferent


not at all very

mentally engaged


not at all very

bored


not at all very

sensed a deeper meaning


not at all very

confused


not at all very

sparked my interest


not at all very

unsettled


not at all very

1 / 8

About this survey

This research is all about connection and so we’d love you to tell us how each film makes you feel.

To read more about our process, have a read of our evidence base page.

What do we say, and what do people hear, when we talk about genomics?

Only Human worked in collaboration with Maslansky the language experts, to explore how medical science ‘speaks to us,’ especially around topics like genetics, which are often considered controversial or contentious. Speaking to people seldom heard in the genomics conversation about how the kinds of language and phrasings commonly used to communicate genetics made them feel, the findings were both enlightening and sobering.

Behind the Scenes: Maslanksy research on ‘The Legacy of Language’

Only Human

Some people are alienated by and distrustful of advances in medical science and research, especially around DNA and genetics.

The majority of the British public feel that scientists should listen more to what ordinary people think. We agree with them. And we research how to communicate better. Which is why we’ve developed this website.

Watch a video, then use the quick-response survey questions to let us know how you feel about it. There’s a range of videos you can watch, in different genres, tones and lengths.

You can also download them all for free and use them yourself.

If you want to join our consortia, contribute, donate or just be part of the Only Human movement then contact Professor Anna Middleton: kavlicentre@educ.cam.ac.uk

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